Title: | Persons With a Migration Background Caring for a Family Member with Dementia: Challenges to Shared Care |
Author(s): | Ahmad, M. ; Van den Broeke, J. ; Saharso, S. ; Tonkens, E. |
Publication year: | 2020 |
Source: | The Gerontologist, vol. 60, (2020), pp. 340-349 |
Number of Pages: | 10 p. |
ISSN: | 1758-5341 |
DOI: | http://dx.doi.org/10.1093/geront/gnz161 |
DOAI: | http://doai.io/10.1093/geront/gnz161 |
Annotation: | 19 -2 30-1 |
Publication type: | Article / Letter to editor |
Please use this identifier to cite or link to this item : https://hdl.handle.net/11439/3686 ![]() |
|
Display more details |
|
Subject: | A meaningful life in a just and caring society vanaf 2018 Een zinvol leven in een rechtvaardige en zorgzame samenleving vanaf 2018 |
Organization: | UVH Burgerschap en Humanisering van de Publieke Sector (B&HPS) |
Journal title: | The Gerontologist |
Volume: | vol. 60 |
Page start: | p. 340 |
Page end: | p. 349 |
Abstract: |
Background and Objectives: By shedding light on the reasons why persons with a migration background (PwM) may take
up the role of family caregiver of a person with dementia, and how this relates to gender norms, we aim to elucidate cultural
and social dynamics that impede care sharing.
Research Design and Methods: A qualitative study of 12 PwM who provide care, or have recently provided care, for a
family member with dementia was conducted through semi-structured interviews. Identified themes and patterns were
analyzed with the help of Hochschild’s interpretive framework of framing and feeling rules.
Findings: Our findings illuminate how motivations to provide care are framed through two moral framing rules, reciprocal
love and filial responsibility, and how these framing rules are accompanied by the feeling rule of moral superiority over
non-caregiving family members. We show how shared dementia care is impeded though these moral framing and feeling
rules, and how gender norms impact on an unequal distribution of care-tasks.
Implications: Healthcare practitioners should identify the moral dialectics of caregiving. This means that, on the one hand,
they should be aware that moral framing rules may pressure women into exclusive caregiving, and that this can lead
to health problems in the long term. On the other, healthcare practitioners should recognize that providing care can
create a deep sense of pride and moral superiority. Therefore, showing acknowledgement of the caregiver contribution is a
crucial step in creating trust between the caregiver and healthcare practitioner. Furthermore, asking for support should be
normalized. Governmental advertisements on care–support can achieve this.
|